August 6, 2012

Pearl Joy Brown: A Miracle, A Fighter

**If you are here looking for my 300 follower giveaway, it will post tomorrow. I found this post to be so much more important and I hope that you will read it in it's entirety.
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There are times in your life when you realize how small your problems are, how easy your life is. In times like these, I often think about this quote from Regina Brett -- 
"If we all threw our problems in a pile and saw everyone else's, we'd grab ours back."

I had one of those moments this week when I heard about sweet Pearl Joy Brown. My problems seemed insignificant and miniscule in light of what this family is going through. 

At 20 weeks along, Ruth and Eric were told that their daughter Pearl has a condition called alobar holoprosencephaly (HPE). In short, this condition causes the brain and features of the face to not form correctly. The condition is deemed "not compatible with life." If Pearl was to survive her life in the womb, she might only live minutes or hours here on Earth. Or she might live days and years. Still, the Brown family (which includes two other beautiful children, Brennan and Abbey) was told by a specialist that they should induce labor instead of prolonging the inevitable. 

Thankfully, Ruth and Eric followed their hearts and did not induce labor. Pearl Joy was born over a week ago and is still alive! Her life has not been without difficulty, she has had spells where she stops breathing, very long epileptic episodes, and the Brown family has been set up with hospice care at home...but still, Pearl is fighting. She is one tough girl. Right now, the Brown family is working with specialists and continuing to search out more doctors who understand Pearl's condition as it is very, very uncommon.   
 

Today, I am asking that you intervene on behalf of the Brown family through prayer. That you run to the throne of God and you ask for healing, for strength, for health, for acceptance no matter what the outcome. Pray for Pearl's parents, Ruth and Eric, and for her two siblings, Brennan and Abbey, that already deeply love her.

 All pictures taken by Pearl's proud daddy, Eric

I think in situations like this, we often don't know what to pray or how to pray, so we don't. If you aren't sure what to pray, you aren't alone. I find myself at a loss for words when thinking of this family so I say a "breath prayer"...it's short, it's to the point..."God, be with Pearl today." "God, give Ruth and Eric something to smile about today." "God, strengthen Pearl's lungs and keep her from having seizures."

Although I do not personally know the Browns, I have had the opportunity to talk to Eric a few times through Twitter and I can tell you that through his tweets and their blog, it is so apparent that the Brown family so trusts in God's infinite grace and love. Eric has sent his sincere thanks multiple times at the thought of all of you praying for Pearl.

Thank you, my friends, for listening to this story and for seeing Pearl as God sees her -- perfect, without a flaw. Thank you for thinking of this family, thank you for praying for this family. It will not go unnoticed. 

You can follow along with Pearl's journey through regular tweets from Eric
or through updates via the Pearl Joy Brown Blog.
If you feel led to help the Brown family financially, you can donate directly to PayPal here.



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16 comments:

  1. Amen. Thank you so much, Carly, for sharing Baby Pearl's story. For us, knowing Pearl has been a game changer and a heart changer. We will never be the same and we are so thankful.

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  2. So true. Thank you for articulating that so well. I haven't met the Brown's, but they have been on my heart and mind since I first read their blog. Counting my blessings.

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  3. Sending prayers. I linked this to my page today.

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  4. Thank you for sharing!! This family is in my prayers!!!

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  5. What a beautiful baby girl!! My heart hurts for their family! My nephew was born with something similar - but he also had a heart problem. He is 13 today - so God is good!! (:

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  6. Thank you for sharing this. I know a family that had a baby with this same thing. My prayers are with this family and sweet pearl. She is just beautiful

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  7. While I have never met the Browns personally, I have felt completely bonded to them through the incredible honor and privilege of praying with and for them. Thank you for sharing their story and the blessing that baby Pearl has been to us all.

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  8. thank you carly. this story is amazing and so full of hope!

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  9. Like you, I don't know the Brown's either but love baby Pearl (and family) so much! They are on my mind and in my prayers all day every day. Thanks for sharing!

    The link to paypal isn't working...I had not seen a place to donate until now...thanks for sharing that as well.

    Looking forward to reading your blog!

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  10. http://pearljoybrown.wordpress.com/ Links to supporting them there too.

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  11. Thanks so much for sharing this Carly!! Praying for the entire family!

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  12. Thank you so much for sharing this. I would love to help by putting a Scentsy fundraiser to help raise funds. My commission from the fundraiser will go to the Brown Family. Let me know if they are interested.

    here's my website if they will like to take a look of what I sell
    www.itsheavenly.scentsy.us

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  13. Thank you for sharing this story. As a NICU Mom myself it really hits close. I am praying for them!

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  14. Thanks so much for sharing this story. I cannot imagine what they are going through. Praying for hope and healing for their family!

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  15. I am so glad that you shared this story... Praying for this beautiful family that they'll find strength in this journey and for Pearl, as she fights for her life. Already a miracle baby and this message needs to be passed along! :)

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  16. I have a Scentsy fundraiser going on for the Brown family. If any one wants to contribute just click on the link below. 20% of the sales will go to the Brown Family in Peal Joy's Honor

    https://itsheavenly.scentsy.us/Scentsy/Buy?partyId=97931326

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